What are rare diseases?
The Norwegian National Advicery Unit on Rare Disorders (NKSD) defines diagnoses that occur in less than 500 individuals - or 1 per 10,000 inhabitants in Norway, as rare diseases.
There are approximately 30,000 people in Norway who live with a rare disease. These diseases can be very serious, life threatening, worsening over time, and may lead a shorter life expectancy. The diseases can be hereditary and innate or occur later in life. Worldwide, today, we have identified approximately 7,000-8,000 different rare diagnoses, and there are drug treatments available for only a fraction of these. For those patients able to benefit from drugs, treatment is crucial and gives the opportunity to live a good life.
Read more about rare diseases at: https://Helsenorge.no/Sjeldnediagnoser